The Reality of Rare

One out of every four people diagnosed with cancer in Australia is told that their type of cancer is rare. That’s one person every 13 minutes. Every 13 minutes, a daughter, a son, a mother or a father is told “we don’t know the next steps for you.”  Diagnoses are often late and protracted, treatment options limited, prognoses uncertain, and information and support hard to come by.   But there is reason for hope. We are working alongside government, clinicians, researchers and industry to create a future where no one is disadvantaged because of the rarity of their cancer.