Our Community Advisory Board (CAB) plays an important role at Rare Cancers Australia, ensuring the patient experience is at the heart of everything we do.
It provides a vital platform for patients, carers and family members to apply their lived experiences and help shape RCA’s policy development, resources and projects. By bringing authentic, real-world insights, CAB members play a critical role in ensuring the perspectives of the rare cancer community are understood.
We’re currently seeking to diversify the CAB to better reflect our community, including people from a variety of cultural backgrounds, ages, genders, locations and more.
To express your interest, please review the eligibility criteria below and complete our short online form.
Who can join the CAB?
- People diagnosed with rare or less common (RLC) cancers, or carers and family members of individuals affected by RLC cancers who are willing to shape and provide guidance on RCA initiatives
- We want to ensure the CAB reflects our community, so expressions of interest are welcomed from people of all ages, cultural backgrounds, genders, geographic locations and cancer types.
What to expect
- Opportunities to consult on RCA projects via email, telephone, video conferencing, or in-person at quarterly meetings
- Remuneration in line with RCA’s remuneration policy
- Flexibility to participate in discussions that align with your capacity and wellbeing
- A chance to contribute to meaningful change in the rare cancer space.
Expressions of interest
We are currently seeking expressions of interest from individuals who are passionate about making a difference in the lives of those affected by rare cancers.
To express your interest, please review the eligibility criteria below and complete our short online form.
Eligibility criteria
To ensure the RCA Community Advisory Board represents diverse perspectives and lived experiences within the rare cancer community, applicants are invited to consider the following eligibility criteria:
- Personal experience with rare or less common cancers
- Must be a person diagnosed with a rare cancer, a carer, or a family member of someone affected by a rare cancer
- Willingness to apply lived experiences to help inform RCA’s policies, resources and initiatives
- Commitment to the RCA CAB’s purpose
- Passionate about applying the perspectives of people affected by rare cancers
- Willing to provide input on RCA projects, policy development and community initiatives
- Supportive of person-centred practices and the values of RCA
- Ability to participate
- Comfortable engaging in discussions via email, telephone, videoconferencing, or in-person (where feasible)
- Able to contribute time as needed (flexible participation based on personal capacity)
- Willing to collaborate respectfully with other CAB members and RCA staff
- Confidentiality and ethical considerations
- Must agree to maintain confidentiality of sensitive discussions and materials shared within the CAB
- Must act in a respectful and ethical manner in all CAB activities
- Conflict of interest disclosure
- Applicants must declare any potential conflicts of interest, such as affiliations with other advisory boards that may influence their perspectives.
Membership is voluntary, with remuneration provided in accordance with RCA’s honorarium policy.