Diagnosis Booklet

Guiding you through every step of a rare cancer diagnosis.

A doctor talking with his patient in a waiting room.

The Diagnosis section of the Rare Cancer Support Guide can help relieve some of the uncertainty that comes with a cancer diagnosis. It explains what to expect and where to start, with answers to some common questions.  

The Diagnosis booklet covers:  

  • Emotions after diagnosis
    The mixed emotions you may feel, and where to find support 
  • Informing yourself
    How to find credible and relevant information 
  • Preparing for initial appointments
    Tips for attending appointments and suggested questions to ask 
  • How a diagnosis is made
    An outline of different diagnostic methods 
  • Understanding a prognosis
    What a prognosis is based on, staging and grading, and considerations 
  • Childhood cancers
    Finding support, treatment, and financial resources and options 
  • Tool: Communicating with your healthcare providers
    Important questions to ask and things to let your healthcare team know 
  • Understanding your rights
    Your rights as a patient, addressing your concerns, and asking for a second opinion 

The advice comes directly from patients and carers who have been there, and from the knowledge of many health care professionals across the cancer care sector. It also includes the lessons we’ve learned at RCA over many years of supporting people living with rare cancer in Australia.

 

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Other Rare Cancer Support Guide booklets

Manage and navigate every stage of a rare cancer experience with the trusted information, tools and advice in the Rare Cancer Support Guide.

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