“Firstly, I love the title of Navigator as it truly reflects your role. I just wish I had found out about your services at the start of my journey as it’s clear that there would have been benefit at the very start. Alas, I have you now and I (and my family) are very thankful and grateful for your services and support. Thank you.
“After receiving a frightening diagnosisthe process of identifying a disease based on signs and symptoms, patient history and medical test results, it is very helpful to have a calm person to speak to who is knowledgeable in the field.
“He was very compassionate and beyond helpful. I am so grateful I have him in my corner. Thank you so much, your support during this time has made me feel less isolated.
“I found her very personable, professional and supportive. I am most appreciative of her speedy assistance. You are fortunate to have her as I am.
“Thank you for being there.”
We are grateful to have received such beautiful words about our Specialist Cancera disease where abnormal cells split without control and spread to other nearby body tissue and/or organs Navigators from some of the patients and families we supported in 2022. It is a privilege to be a part of their journey
We received these quotes after sending out an anonymous survey. The aim of this was to capture the impact of our Patient Support services, to better understand if our approach was helpful to the patient’s journey, and to identify areas of improvement for those we support
The responses we received gave us helpful insights into how patients and families use our service. We will continue to use this approach to measure the impact of our services and to ensure we deliver on our mission
If you have feedback on our Patient Support services, we’d love to hear from you. You can email us at [email protected]
About our Patient Support services
We are a charity dedicated to rare cancer awareness and support and understand the complex challenges you may be facing – and we know that this isn’t the same for everyone.
Our Specialist Cancer Navigators have specific expertise in complicated cancer journeys and provide 360-degree personalised support, which means that whatever matters to you, matters to us. This could include:
Emotional support, to help you cope with the uncertainty.
Peer support, to help you connect with others walking a similar path.
Practical and social support, to help you maintain the best possible quality of lifethe overall well-being of a person diagnosed with cancer, encompassing both physical and emotional aspects of health.
Financial resources, directing you to services and options to help manage costs.
Clinical support, to help you navigate the healthcare system and communicate with your healthcare teams.
If you would like more information about our personalised support, you can reach our Patient Support Team on 1800 257 600 or at [email protected]