Well, the winter solstice has passed, and daylight hours are on the rise. This means more time to get that recommended dose of sunlight - great for your mood and calcium levels. As clinical psychologist Bruce Schubert recommends, a cup of tea or coffee in the sun is an excellent way to do this.
To hear more of his advice and some incredible stories of advocacy, hope, and current research in the rare cancer space, head on over to Radio Rare - the podcast for the rare community.
As always, we’ll keep working hard to bring more of the content that matters to you. Let us know what you want more of or if there are issues that you want addressed; send an email to digital@rarecancers.org.au.
If you have any concerns regarding the Coronavirus (COVID-19) there is information and resources available at on our RCA COVID-19 Hub.
Liz Pickworth - "I really hope I achieve this dream".
My name is Liz. I’m a 32-year-old mum living in Canberra and recently underwent extensive treatment and surgery from a large, stage IV Thymus cancer.
Click here to read more
I See You
I see you as you open your eyes in the morning, already weary and fatigued after such troubled, uncomfortable sleep, to yet another day at the whim of your cancer.
Click Here to read more
Did you know?
You can call 1800 257 600 to speak to our patient support team for any information or support needs.
Support Groups
Rare Connect is a telephone or video conferencing support group for all people affected by rare or less common cancers. Whether you want to find out about suitable clinicians and treatment options, or just have a chat about anything related to your cancer experience, Rare Connect is for you.
Find out more
We currently run the following groups:
Rare Cancer Carers Telephone Support Group
Thymoma Telephone Support Group
Medullary Thyroid Telephone Support Group
Gastrointestinal Stromal Tumour (GIST) Telephone Support Group
Sarcoma Telephone Support Group
Groups happen fortnightly but you don't have to join every session. All you need is a phone or laptop to connect.
- Requesting the group facilitator to call you in
- Dialling in yourself via Microsoft Teams using your phone
- Joining via video conferencing with Microsoft Teams
- Joining the private Facebook group and chatting with the participants there
The Patient Support staff will provide the conference ID and link to the meeting prior to the session.
For more information, please give the Patient Support team a call on 1800 257 600.
Rare Cancer KnowledgeBase
A cancer diagnosis can come as a shock for everyone and the last thing you want is to have to search for information. We can do the searching for you and take that burden off your shoulders.
Find out more
Radio Rare is our official podcast where we share the stories of those in and around the rare and less common cancer community. Being diagnosed with a rare cancer doesn’t mean you’re alone.
Find out more
Latest episode
Episode 12 - Patient Advocate, Jessica Bean
Patient advocate and founder of the Patient Voice Initiative, Jessica Bean, discusses some topics that are central to many rare diseases, not just rare cancers, clinical trials, compassionate access, and patient advocacy.