There are tools, resources and services out there that can help you each step of the way. We can help take the pain out of it all.
CAN.Recall App
Patients diagnosed with cancer are confronted with vast quantities of life changing information at a time of great stress. They are also under pressure to communicate details of their condition and treatment to many family and friends.
Our app can help you recall the important details, and communicate them effortlessly.
Improve your memory
Clinical Trials
Clinical trials are conducted in a series of steps which investigate the safety and efficacy of new cancer treatments and new drug combinations. The ultimate aim is to discover what the best standard treatment is, and whether a new treatment is better than existing ones.
Trials do not always focus on drugs, radiotherapy and surgical approaches, but as a rare cancer patient these are probably the ones you will be most likely to participate in.
Learn moreFind a trial
Support Services
These services are essential in alleviating some of the stress and hardship experienced by patients, carers, and families.
If you can't find the help you need call us on 1800 257 600
Find Support
Podcast
Radio Rare is a podcast that shares the stories of those in and around the rare and less common cancer community and is hosted by Dr Emily Isham.
Being diagnosed with a rare cancer doesn’t mean you’re alone and Radio Rare will dive into the human stories of the rare cancer experience, the innovation, and the advocacy. Addressing the feeling of isolation experienced by so many, we look to create a connected community of those affected by rare and less common cancers.
View All Episodes
Patient Stories
"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years" - Anita
See All StoriesShare your Story
Useful Resources
If you can’t find the right answers within our KnowledgeBase, we have compiled a list of resources and relevant links that may help you answer any further questions you may have.
View All Resources
Still have questions?
We have a friendly team available to chat about any questions you may have, or just to lend an ear if you’re having a tough time.
Call 1800 257 600Have us call you